Disability: Help Navigating Resources

Disability conditions are long-term conditions that make it more difficult to do certain activities and will need to be managed through special needs care.

Featured Support Organizations

Our mission is clear: encourage and equip medical practitioners to provide an evidence-based rationale for defending the lives of both the pregnant mother and her unborn child.

Ability Ministry is an independent Christian nonprofit that provides resources, curriculum, training, and residential services designed to equip and empower the disability community

Accepting the Gift was started by a special needs mom as a conference in 2019 with the goal to connect Catholic special needs parents with each other, as well as with great speakers and resources. But she quickly realized a once a year event wasn't enough. Catholic special needs parents need the ability to connect year round and so, the name of the conference became the name of a new website, and apostolate, designed to empower each family in their mission as parents and caregivers.

Hope Story is a team of medical professionals and storytellers. We believe that stories have the ability to provide hope to others and change the world. At our core, we exist to help people learn to tell their stories and help them find opportunities to share them with people that need to hear them the most.

We help medical professionals deliver hopeful stories to their patients. We help parents raising children with Down syndrome leverage their unique story to bring hope to parents whose child has received a Down syndrome diagnosis. We connect parents whose child has received a new Down syndrome diagnosis to parents who have a child with Down syndrome so that they can receive encouragement, support, and hope. We believe a little bit of hope can go a long way.

For the past 40 years, it has been our mission to present the hope of the Gospel to people affected by disability through programs and outreaches around the world. We energize the church and move people from lack of awareness to embracing people of all abilities into the fabric of worship, fellowship, and outreach. We also train and mentor people with disabilities to exercise their gifts of leadership and service in their churches and communities. 

The Mission of The National Catholic Bioethics Center is to provide education, guidance, and resources to the Church and society to uphold the dignity of the human person in health care and biomedical research, thereby sharing in the ministry of Jesus Christ and his Church.

Following the example of Jesus, The National Catholic Partnership on Disability works with dioceses, parishes, ministers, and laity to promote the full and meaningful participation of persons with disabilities in the life of the Church.

Our mission is to help families find a new normal as they navigate through the grief that comes when they’re told that their little one will be different.

Prenatal Partners for Life is a group of concerned parents (most of whom have or had a special needs child), medical professionals, legal professionals and clergy whose aim is to support, inform and encourage expectant or new parents. We offer support by connecting parents facing an adverse diagnosis with other parents who have had the same diagnosis. We have many resources such as adoption agencies with clients waiting to adopt and love a special needs child should a parent feel they could not care for them. We believe each child is a special gift from God.

The "Wonderfully Made" Psalm 139:14 photographic series showcases families that have been given a great gift from God. In this series families with children with special needs share their testimony of the great blessing that their child is for their families. As human beings created in the image and likeness of God we attest that their lives have a meaning and a purpose as they have been wonderfully made.

Additional Support Organizations

The American Society for Deaf Children (ASDC) is committed to empowering diverse families with deaf* children and youth by embracing full access to language-rich environments through mentoring, advocacy, resources, and collaborative networks.

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

Best Buddies International is a nonprofit 501(c)(3) organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment, leadership development, and inclusive living for individuals with intellectual and developmental disabilities (IDD).

Supporting the Parent Centers Who Serve Families of Children with Disabilities

Our mission is to create opportunities for people with intellectual and developmental disabilities and their families to participate fully in the community.

The Foundation is a nonprofit corporation that works to enhance the quality of life for persons with developmental disabilities, support community integration, and increase community awareness about the needs of persons with developmental disabilities.

Having a child with a disability or special health care needs can mean extra costs. This page has a list of different organizations that might be able to help. We found them by reaching out to other parents and researching online. Some places help only families who aren’t able to pay for certain things. Other places just want to help, no matter what your income.

We change lives through consistent delivery of free educational, therapeutic-based and career development programs for individuals with Down syndrome, their families and the community, through a replicable playhouse model.

Kozie Clothes is committed to serving the unique need for stylish, fun, and therapeutic clothing and products for the Pediatric Special Needs community. At Kozie Clothes we believe that all children are unique, and deserve to feel comfortable and happy every day. We have a wide range of sensory engineered clothing and solutions for kids of all ages, as well as products designed for toddlers, newborns, and preemies who require ongoing medical care.

Lettercase is part of the National Center for Prenatal and Postnatal Resources and offers resources and support for medical providers and expectant parents first learning about a prenatal or postnatal diagnosis. We offer a clearinghouse of accurate, balanced, and up-to-date information about various genetic conditions for expectant parents first receiving the news. Our resources discuss common medical conditions, available supports and services, and common life outcomes in multiple languages.

Nancy’s House provides one and three-day retreats, conferences, and workshops to build a community of support, nurture guests, and teach caregivers how to care for themselves while caring for others

We’re the only legally based advocacy organization established by Congress to protect the rights of all individuals with disabilities. As part of that mandate, our network includes agencies in every state and U.S. territory, working to provide legal protection and advocacy services for people with disabilities.

This directory connects to local, state, national, and international websites to help you.


Wondering why me and what the Bible has to do with my child with special needs? We'll discuss the deep topics of brokenness, suffering, and disabilities while learning about providence, sovereignty, God's image, and grief. Challenge yourself to see your struggles as a special needs parent in a new light with confidence that your child has been fearfully and wonderfully made.

Daring women—those who were told not to have their babies due to perceived disabilities in themselves or their unborn children—tell their stories in this controversial book that looks critically at medical eugenics as a contemporary form of social engineering. Believing that all life is valuable and that some are not more worthy of it than others, these women have given birth in the face of disapproval and hostility, defied both the creed of perfection and accepted medical wisdom, and given the issue of abortion a complexity beyond the simplistic pro-life/pro-choice dichotomy. As it questions the accuracy of screening procedures, the definition of a worthwhile life, and the responsibility for determining the value of an imperfect life, this book trenchantly brings to light many issues that for years have been marginalized by the mainstream media and restricted to disability activism.

On November 16, 2010, Lee and Sandra’s lives changed with just a short sentence from a child psychologist, “We believe your son has autism.” In that moment, so much changed … but what didn’t change was that God still held the Peoples family, they were never out of His grip. In this Bible study written for special-needs parents by special-needs parents, you will learn you are not alone. Even when life feels out of control, it will help you remember He is in control. You will learn there is a future hope we all can cling to. You will learn there are others out there, just like you, who need to be shown they are also in the grip of God.

Dr. Marie Hilliard (Director of Bioethics and Public Policy at the National Catholic Bioethics Center interviews Dr. John Bruchalski, an OBGYN and founder of the pro-life Tepeyac Family Care Center.

Special Needs Parenting: From Coping to Thriving offers emotional and spiritual resources for the journey of special needs parenting. Sharing personal insights as a theologian and the parent of an adult son with special needs, Rev. Dr. Lorna Bradley offers seven encouraging and practical tools to help the reader: o gain a deeper, grace–filled understanding of God's presence o process deeply held feelings of grief and guilt o discover strategies for patience, self–care, and healthy relationships o find hope and healing Powerful for the individual reader, the built–in reflection and discussion questions make Special Needs Parenting an ideal, real–life resource for small groups. Special Needs Parenting is a must-read for family members, pastors, and any person who works with special needs families. Dr. Bradley explores their challenges, grief, and joy with deep sensitivity, theological depth, and practical advice. A blessing to all who read it and allow their lives to be touched by wisdom born of personal experience and biblical scholarship. 

"How could God let this happen? I can't do this! How can my child have a meaningful life? Where is God in all this?"When a parent hears that their child has a disability, hearts and hopes are broken. But faith doesn't have to be. Unbroken Faith identifies and treats the crippling fear, guilt, and inadequacy that parents of children with special needs can encounter. Diane Dokko Kim comes alongside families as a fellow special-needs parent to help reconcile the premise of a good God with the devastating realities of raising a child with disability. Diane courageously articulates deep-seated, unspoken doubts and fears you may have but are afraid to voice

If your child struggles with physical, emotional, mental, or behavioral difficulties and you find yourself disillusioned and disheartened, this study is for you. Written by a mom who is also walking this journey, "Unlocking the Treasure" offers hope and encouragement in the midst of daily battles and extraordinary challenges. As the pages of Scripture are opened, you will uncover the treasure of a heavenly Father who deeply loves His children. This journey will bring you into the heart of Scripture where you will discover God's lavish love and gentle compassion. You will learn what it means to trust God with yourself and your child. You will discover the God of hope and uncover the promises of peace and contentment. Finally, you will bring to light the hope of an abundant and joy-filled life, even on this side of heaven!